Tag: childhood epilepsy

  • Purple Day—Our Epilepsy Story

    Purple Day—Our Epilepsy Story

    When our daughter was eight months old she was diagnosed with a chromosome 3P deletion/duplication disorder. Doctors told us to expect some devastating things. Some came true, but thankfully most did not. The one thing they didn’t tell us to expect was seizures—those began when Avery turned three. We were caught completely by surprise.  One…

  • I Like My EEGS Sunnyside Up

    I Like My EEGS Sunnyside Up

      We kept our daughter up for most of the night to deprive her of sleep, on purpose. Consider it payback for all the nights she’s kept us awake. In your face, Avery! Mwah hahaha…   Kidding. She was scheduled for an EEG the next morning.   Having her good and exhausted prevents her from…

  • EEG Results Are In

    EEG Results Are In

    To the untrained eye, these wavy lines are a series of peaks and valleys forming scribbles across a page. It seems incredible to me that anyone can decipher their meaning. A neurologist can examine these lines and see inside my child’s brain — she’s breathing, she’s dreaming, she’s learning, she’s remembering; the lines tell a…

  • How Confronting My Child’s Doctor Brought Me Peace

    How Confronting My Child’s Doctor Brought Me Peace

    Since our daughter was little, we’ve worked with cardiologists, neurologists, therapists, orthotists, geneticists, pharmacists, speech pathologists—so many “ists.”. There was a time when I followed a specialist’s advice without question. They were the professional—the expert. Who was I to question them? That was then. Now I question everything. I research every word. I seek second…