Tag: Epilepsy
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Purple Day—Our Epilepsy Story
When our daughter was eight months old she was diagnosed with a chromosome 3P deletion/duplication disorder. Doctors told us to expect some devastating things. Some came true, but thankfully most did not. The one thing they didn’t tell us to expect was seizures—those began when Avery turned three. We were caught completely by surprise. One…
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International Epilepsy Awareness Day
March 26 is International Epilepsy Awareness Day and Gary Collins, the Executive Director of Epilepsy Canada, will dye his hair purple on that day to raise money for epilepsy research. Our daughter Avery is among the over 300,000 Canadians, including Mr. Collins, who have been diagnosed with epilepsy. Another 15,000 will be diagnosed this…
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A Peek Inside Her Head
Have you ever looked at your child and asked, “What is going inside that head of yours?” Apparently there’s a way to find out. Just hook up them to tangle of rainbow coloured wires and take a gander at their brain waves… Avery has been having seizures since she was three years old. This…
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Brain Waving
Our beautiful daughter has Epilepsy. I refused to believe it at first, but couldn’t dispute that the squiggly lines on the electroencephalography monitor were indicative of a life threatening seizure disorder. After a year of tweaking her meds, we were thankfully able to control her seizures and Avery has been footloose and (nearly) seizure free…
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Sleep Studies Are Tiring!
Our daughter had a sleep study last week in hopes of getting to the bottom of why she has such a difficult time staying asleep. When we arrived at the Sleep Lab, Avery was happy to be there. I suppose there’s a certain air of excitement—new environment, friendly faces, lots of attention, rubber gloves. She was rigged with…
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