Tag: My special girl
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How Confronting My Child’s Doctor Brought Me Peace
Since our daughter was little, we’ve worked with cardiologists, neurologists, therapists, orthotists, geneticists, pharmacists, speech pathologists—so many “ists.”. There was a time when I followed a specialist’s advice without question. They were the professional—the expert. Who was I to question them? That was then. Now I question everything. I research every word. I seek second…
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The First Seizure
How sweet she looks strapped into this retro looking wheelchair. We laughed about how it looked like a prop from the horror movie, “The Changeling.” We made jokes, but what our family had just gone through was far from funny. Though our daughter has spent her fair share of time in pediatric wards over the…
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Paging Dr. McDreamy—Ear Tube Surgery
Our daughter had ear tube surgery today. Not a major procedure, but to me it may as well have been a brain transplant. Avery is 33 months old and isn’t talking. She has underlying genetic issues that are likely the cause, but we also know she has fluid in her ears. A whole lot of…