Tag: seizures
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Purple Day—Our Epilepsy Story
When our daughter was eight months old she was diagnosed with a chromosome 3P deletion/duplication disorder. Doctors told us to expect some devastating things. Some came true, but thankfully most did not. The one thing they didn’t tell us to expect was seizures—those began when Avery turned three. We were caught completely by surprise. One…
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International Epilepsy Awareness Day
March 26 is International Epilepsy Awareness Day and Gary Collins, the Executive Director of Epilepsy Canada, will dye his hair purple on that day to raise money for epilepsy research. Our daughter Avery is among the over 300,000 Canadians, including Mr. Collins, who have been diagnosed with epilepsy. Another 15,000 will be diagnosed this…
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Seizures and Todd’s Paralysis
Our daughter had her first seizure the summer of 2009. She stopped breathing and her heart raced out of control. There are times, even years later, that I stand in her room reliving that night, imagining all the what ifs in painful detail. What if the ambulance hadn’t made it in time? What if, what…
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A Peek Inside Her Head
Have you ever looked at your child and asked, “What is going inside that head of yours?” Apparently there’s a way to find out. Just hook up them to tangle of rainbow coloured wires and take a gander at their brain waves… Avery has been having seizures since she was three years old. This…
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Seizure Salad
Our daughter has Epilepsy. The onset was sudden (at the age of three) and the year it took to bring her life threatening seizures under control was brutal. Now secure in the knowledge the medication is doing its job to keep the big seizures at bay, we’re able to breathe. I can even leave Avery…
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