Tag: seizures
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Brain Waving
Our beautiful daughter has Epilepsy. I refused to believe it at first, but couldn’t dispute that the squiggly lines on the electroencephalography monitor were indicative of a life threatening seizure disorder. After a year of tweaking her meds, we were thankfully able to control her seizures and Avery has been footloose and (nearly) seizure free…
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A Bittersweet Anniversary and Post Traumatic Stress
This story was originally published in 2010. Avery continues to do well on her anti-seizure meds and life is good. 🙂 It was an ordinary day. If you consider 40 degrees Celsius in May normal. Avery and I dropped big brother at school and went through our day like any other. It was exactly…
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Flowers In The (playhouse) Attic?
I love my brother. Not in a Flowers in the Attic sort of way, but a… Iamsoluckytohavesuchanamazingsibling kind of way. A few weeks ago my brother Michael and my niece and nephew came to stay with us during American spring break. I said it then and I’ll say it again, “BEST…VACATION…EVER” said oh so sarcastically. I am…
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Better
My god I’m a useless sack of skin when I’ve had no sleep. Honestly. My brain don’t work so good. If I were smart, which I’m not, I’d go to bed instead of writing this. The thing is, I’m on “full alert” right now. Avery had two small seizures on Saturday and since she has…
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How Confronting My Child’s Doctor Brought Me Peace
Since our daughter was little, we’ve worked with cardiologists, neurologists, therapists, orthotists, geneticists, pharmacists, speech pathologists—so many “ists.”. There was a time when I followed a specialist’s advice without question. They were the professional—the expert. Who was I to question them? That was then. Now I question everything. I research every word. I seek second…